|
|
Post by bigballofyarn on Jul 1, 2015 5:26:53 GMT -5
We will accept donations through two places this season. This mission will be posted July-September. If you find a local chapter, feel free to send me a PM so that I can verify the website for you. grow.ctf.org/sslpage.aspx?pid=298www.nfnetwork.org/donate-now/onlineRemember, your donation directly supports Neurofibromatosis research and helps ensure that the most promising projects are thoroughly funded and explored. There currently is no cure, so all donations are appreciated. --- Helpful Links: Understand NF. What is it? Why haven't I heard about this?--- If you have any questions about NF that are unanswered feel free to post here or ask me directly. Since this charity is special to me, I will be making awards for those who donate $25+. It doesn't have to be in a single donation. It can be cumulative over the next 3 months. |
|
|
|
Post by teteri66 on Jul 1, 2015 6:31:09 GMT -5
|
|
|
|
Post by boots on Jul 1, 2015 8:37:09 GMT -5
I really really wish I could afford to match donations this month...
|
|
|
|
Post by Perfectly Imperfect on Jul 1, 2015 8:46:41 GMT -5
I think 2 or three members here actually have NF. This is so great.
|
|
|
|
Post by Juliet Long on Jul 1, 2015 8:48:13 GMT -5
I think 2 or three members here actually have NF. This is so great. I have it. |
|
|
|
Post by Tim05 on Jul 1, 2015 9:26:42 GMT -5
I think 2 or three members here actually have NF. This is so great. I have it. If you're comfortable, would you mind giving a brief rundown of the condition? I read the Wikipedia page, but it left a lot to be desired. |
|
|
|
Post by Juliet Long on Jul 1, 2015 9:29:42 GMT -5
Christina has it too.
It's hard to be brief when it's completely different with each person who has it.
Basically you can "have it easy" with some skin tumors, spots, and walk around like nothing is wrong.
OR you can "have it bad" have chronic pain, thousands of tumors, brain tumors, frequent MRIs, seizures, and so much more.
What makes it unique is that it's completely different in each person, and just because you start off easy doesn't mean it'll stay that way, or if you start out terrible, it could get less severe over time too.
|
|
|
|
Post by Tim05 on Jul 1, 2015 9:52:19 GMT -5
Are the tumors cancerous or can they become cancerous?
|
|
|
|
Post by Juliet Long on Jul 1, 2015 10:05:46 GMT -5
Are the tumors cancerous or can they become cancerous? Any of them an turn into cancer at any time. |
|
|
|
Post by deathstar on Jul 1, 2015 11:15:57 GMT -5
I'm going to move some money around. You and Christina deserve a cure. As does everyone else with NF.
|
|
|
|
Post by Tim05 on Jul 1, 2015 11:24:06 GMT -5
I'm going to move some money around. You and Christina deserve a cure. As does everyone else with NF. Agreed. I donated $30 today. I didn't get an email receipt or confirmation number though? If needed to count, I can send a snippet from my debit card transaction that shows a payment went through.
Going to save a bit for next month's donation. My company will match donations but the minimum donation has to be $50. So next month I'll give $50, and my company will also give $50 
|
|
|
|
Post by Aminkii on Jul 1, 2015 11:30:36 GMT -5
I'm going to move some money around. You and Christina deserve a cure. As does everyone else with NF. Agreed. I donated $30 today. I didn't get an email receipt or confirmation number though? If needed to count, I can send a snippet from my debit card transaction that shows a payment went through.
Going to save a bit for next month's donation. My company will match donations but the minimum donation has to be $50. So next month I'll give $50, and my company will also give $50
seriously? Your company is that generous? They don't even know us. That's so sweet. |
|
|
|
Post by Tim05 on Jul 1, 2015 11:33:20 GMT -5
Agreed. I donated $30 today. I didn't get an email receipt or confirmation number though? If needed to count, I can send a snippet from my debit card transaction that shows a payment went through.
Going to save a bit for next month's donation. My company will match donations but the minimum donation has to be $50. So next month I'll give $50, and my company will also give $50
seriously? Your company is that generous? They don't even know us. That's so sweet. Yeah it's a company policy. They will match any $50-$1,500 donation to charity. It's pretty easy to fill out the forms as well.
Last year I think the USA branch of my company donated something like $7million from the program. Which is great because that also means that the employees donated 7 million dollars.
|
|
|
|
Post by xElle on Jul 1, 2015 11:37:17 GMT -5
Get them to match the tiny ones too, or just wait for 5 ten dollar donations.
|
|
|
|
Post by Chris Johnson on Jul 1, 2015 11:53:05 GMT -5
|
|
