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Post by Juliet Long on Apr 6, 2019 5:15:32 GMT -5
Yes, neurofibromatosis. There is no cure. There are no treatments to stop most of my symptoms. I think some of you knew. But that's the biggest thing I hide from people IRL.
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Post by uncognito on Apr 6, 2019 5:50:53 GMT -5
I'm so sorry! I had no idea.
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Post by yellowbanana on Apr 6, 2019 5:54:09 GMT -5
We're here to support you!
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Post by Holden on Apr 6, 2019 12:34:43 GMT -5
I hope you'll get better one day.
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Post by lucy hanson on Apr 6, 2019 12:41:41 GMT -5
I hope things get better some way, somehow.
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Post by Something Loud on Apr 6, 2019 12:44:47 GMT -5
Just remember you are never alone. We're all here for you.
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Post by Tragic Symphony on Apr 6, 2019 13:04:42 GMT -5
You're not alone. Others on the forum have NF. *hugs*
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Post by Neo on Apr 6, 2019 14:53:31 GMT -5
My thoughts and prayers.
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Post by pumpkinpie on Apr 6, 2019 15:48:56 GMT -5
I'm here if you want to talk about your symptoms.
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Post by Juliet Long on Apr 6, 2019 15:49:32 GMT -5
I have tumors, seizures, skin discolorations and pain!!
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Post by pumpkinpie on Apr 6, 2019 15:49:57 GMT -5
And there's no treatment at all? Can you take anything for the seizures and the pain? I'm really sorry.
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Post by Juliet Long on Apr 6, 2019 15:50:18 GMT -5
There are medicines for some symptoms, but the tumors can only be removed through cosmetic surgery.
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Post by Bubbles on Apr 6, 2019 20:07:07 GMT -5
You're not alone. We're all here.
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